Research · For caregivers
Information for caregivers
Thank you for considering taking part. This page explains what will happen, what we will ask you, and how your information is used.
What will I be asked to do?
You will have a private conversation with Sol in the secure web chat. Sol will ask open questions about your young person — how they learn, what they enjoy, what they find challenging, and what kinds of support help them most. Telegram or WhatsApp may be added later, after the web experience is proven.
There are no right or wrong answers. Sol is trying to understand your young person from your perspective, in your own words.
How long will it take?
One to three sessions of roughly thirty minutes to an hour each. You set the pace, and you can stop and pick it up later.
Is my conversation private?
Yes. Your conversation is completely separate from your young person’s. They will not see what you said, and you will not see what they said. Only the research team has access to both.
What happens to the information?
Sol uses your conversation to build a draft profile of your young person. You will be able to review it and accept, edit, or remove anything before it is used in research.
Edra, Inc. owns and operates Sol. Information is stored using encrypted connections, role-based access, private document storage, and audit records. Source documents and active account details are normally deleted within six months after participation ends. Consent, audit, coded transcripts, and de-identified research records may be retained for ten years after the research project ends. Results are reported without identifying participants unless separate permission is given.
Can I withdraw?
Yes, at any time and without giving a reason — by sending QUIT to Sol, or by contacting support@edra1.com. New collection stops, and the team explains what can be deleted and what must remain because it is de-identified, already analyzed, or required for safety, law, or research integrity.
Common questions
- Do I need to install an app?
- No. The study begins in Sol’s secure web chat. Telegram or WhatsApp may be offered later, but neither is required for the web study.
- What if my young person does not want to take part?
- Participation is entirely voluntary for both of you. If your young person would rather not, that is completely fine and does not affect your own participation.
- Will anything be shared with my young person’s school?
- No. Nothing is shared with schools or any external organisation without your explicit permission.
- Is Sol a clinical or diagnostic tool?
- No. Sol is a research tool. It does not diagnose, assess, or make clinical recommendations. If you have concerns about your young person’s wellbeing, please contact their GP or school SENCO.
Getting started
New here? Request to join, and the research team will review it and email you an invite.
Already have an invite link? Open it to sign up.